03 November 2024

Daniella Thackray Leaves Heartbreaking Message on LinkedIn

 


This is a heartbreaking story, as people as young as 25 aren't supposed to die from cholangiocarcinoma. What a brave woman, what a short life. Before she died, Daniella Thackray wrote:

If ever there is a tomorrow when we’re not together, there is something you must always remember.

You are braver than you believe, stronger than you seem and smarter than you think. But the most important thing is, even if we’re apart… I’ll always be with you.

Daniella added: ‘I really really do hope that in the years to come more research is done about this horrid cruel disease so that more lives can be saved.

21 October 2024

An Insight on “Pop-Up” Urban Memorials

Jane Hutcheon
Jane Hutcheon
This video is an excellent insight into funerary practices, specifically memorials. "Those roadside memorials that send shivers down your spine energized a video discussion as Jane Hutcheon opened a dialog with Professor Gordon Coonfield of Villanova University in Philadelphia, PA. The talk centered on how these memorials capture and communicate feelings in deeply personal and very public ways. The video captures the photographs he shared, many from the Kensington Remembers Gallery site."

The video is about an hour long, but it's fascinating if you want to learn more about graphic street memorials, especially concerning violent or tragic deaths (white ghost bicycles, for instance, for individuals who were killed by automobiles while riding bikes).

"Forget-Me-Not: How We Memorialise is a six-part series for storytellers and family historians that explores how we memorialize and preserve the stories of people who have died. The series is a collaboration between Jane Hutcheon of The Juvenile Geriatric Newsletter and Projectkin.org, a community of family historians hooked on stories.

"Jane Hutcheon is a Sydney-based journalist and the creator and former host of the ABCTV interview show One Plus One from 2010 until 2019. She is also a writer and performer in theater productions. In 2022 she wrote a show about my mother’s upbringing called Lost in Shanghai, and her latest show is Difficult Conversations with Jane Hutcheon. We’re thrilled to have this Forget-Me-Not series as part of Projectkin."

15 October 2024

2024 Houston Cholangiocarcinoma Symposium


The 2024 Houston Cholangiocarcinoma Symposium will be held on Friday, December 13, from 9 a.m. to 3 p.m. This event is an opportunity to connect with others affected by cholangiocarcinoma, meet leading experts in the field, and engage in meaningful discussions. 

The event is designed to provide a comprehensive overview of the latest advancements in cholangiocarcinoma treatment and research and give providers, patients, and caregivers an inside look at treatments, advancements, and resources. Attendees can ask questions directly of experts during panel discussions and network with other patients, caregivers, and healthcare professionals.

Details

  • December 13, 2024
  • 9 a.m. – 3 p.m.
  • Onstead Auditorium (3rd Floor)
  • 6767 Bertner Ave, Houston, Texas 77030

Why Attend?

  • Network with providers, experts, and individuals and families who share similar experiences
  • Learn from leading experts about the latest advancements in cholangiocarcinoma treatment.
  • Engage in interactive Q&A sessions and panel discussions
  • Gain insights into both systemic and non-systemic therapies

Join us for a day of education, support, and community. Your participation is crucial in fostering a stronger network for those impacted by cholangiocarcinoma.

The Houston Symposium will be an in-person-only event. To ensure an inclusive experience, translation services will be available. If you require translation assistance, please indicate your needs on the registration form. This will help us accommodate everyone and provide the necessary support during the symposium.

Register for this free event here to ensure your spot.